Links

Professional Advice

Spaulding Rehabilitation Hospital, Boston MA

RECK MOTOmed Movement Therapy Systems This is a fabulous device anyone can use - even a complete SCI. I used this at SRH and plan to purchase one. It was the most efective therapy for my legs I've ever had and reduced my spasticity.

Project Act Now A really interesting study to follow out ot North Carolina

Inclusive Fitness Coalition A good source for involvement and information

American Academy for Cerebral Palsy and Developmental Medicine The most relevant and comprehensive information I have found

Life Span Committee http://www.aacpdm.org/membership/members/committees/life_span.php
Please view the DMCN Supplement (51:s4) from the workshop Adults with Cerebral Palsy: A Workshop to Define the Challenges of Treating and Preventing Secondary Musculoskeletal and Neuromuscular Complications in This Rapidly Growing Population.

Cerebral Palsy Research Registry (Sign up for Research)

Cerebral Palsy International Research Foundation

Reaching for the Stars Foundation

RFTS Fact Sheet http://www.reachingforthestars.org/RFTSFactsheet.pdf This is an excellent snapshot of where we stand with CP in the US.

United Cerebral Palsy

Faith

Joni and Friends International dedicated to extending the love and message of Jesus Christ to people who are affected by disability around the world. JAF also works with churches to help them better serve the needs of individuals and families.
(New England Office)

Recreation

Freedom Ryder Handcycles (I purchased mine c. 1997, takes plenty of abuse and still in great shape. A purchase for life.)
Bike On Another great resource for other handcycles and equipment
Everyone Outdoors Blog - a little known gem!
The Dr. Charles H. Weingarten Adaptive Sports & Recreation Program provides Spaulding patients, former patients, and disabled members of the community with access to a range of therapeutic recreational activities.
MA DCR Universal Access Programs and regional links for MA and NH
A great overview of opportunities to try and use adaptive recreation eqipment.

Books and Journals

Physical Therapy of Cerebral Palsy, Freeman Miller, MD (2007)
Please view the DMCN Supplement (51:s4) from the workshop Adults with Cerebral Palsy: A Workshop to Define the Challenges of Treating and Preventing Secondary Musculoskeletal and Neuromuscular Complications in This Rapidly Growing Population.

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